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October 22, 2015 by Barbara Drake, Patient Family

Miranda is among rarest of the rare with Koolen-De Vries syndrome

This is our little fighter Miranda. She is the rarest of the rare. One of only 100 people diagnosed in the United States with the rare Koolen-De Vries syndrome. We started with Akron Children's Maternal Fetal Medicine and have spent more time here at Akron Children's Hospital in this lady's first … [Read more...]

Filed Under: Stories Tagged With: #ach125, Koolen De-Vries syndrome, maternal fetal medicine center, open heart surgery, reinberger family center

September 28, 2015 by Suzi Schenkenberger

Heart-felt thanks for a golden anniversary

A 50th wedding anniversary is traditionally marked with gifts of gold, but how do you recognize a 50th heart surgery anniversary? For one former patient, the milestone is filled with thanks and appreciation because she knows first-hand that a healthy heart is worth its weight in gold. When … [Read more...]

Filed Under: Stories Tagged With: #ach125, heart abnormality, open heart surgery

May 11, 2015 by Desi Browning - Patient Family

From the bottom of our hearts, we thank you

My son, Jaymon, was born with double inlet left ventricle. It was terrifying news to hear that my poor little guy was going to have to have multiple heart surgeries. At 4 months old he underwent his first open heart surgery. Drs. Smith and Spector did an amazing job with my son. At 18 months, he … [Read more...]

Filed Under: Recently Shared With Us, Stories Tagged With: #ach125, double inlet left ventricle, open heart surgery

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