My daughter Emma was born at 27 weeks in January 2013. She weighed only 1 lb., 4 ozs., and was 12 inches long. Everything was going well for the first 2 months until they discovered that she had pulmonary hypertension and may not survive.
They immediately intubated and treated her. Luckily, she is a fighter and was able to overcome the pulmonary hypertension.
However, the long-term intubation caused severe damage and scar tissue to her lungs. In May of 2013, Emma underwent surgery for a tracheostomy and g-tube. She was finally discharged on Sept. 25, 2013.
Looking back on our 266 day stay, we could not have made it through the emotional rollercoaster known as the NICU, without the support of the wonderful doctors and nurses at Akron Children’s Hospital – especially Emma’s primary nurse Stephanie Filing.
In November 2014, we welcomed another addition to our family, Alexander, who is currently in Akron Children’s NICU. He was born at 30 weeks and weighed only 1 lb., 12 ozs., and was 13 inches long.
While it’s bittersweet being back in the NICU, I know just like last time, we will get through this with the compassion and support of the outstanding NICU staff.
Thank you Akron Children’s Hospital for all you have done and continue to do for my family!
As part of our year-long anniversary celebration, we’ll be telling the story of Akron Children’s through the eyes of past and present employees, doctors, donors, volunteers and patient families. We encourage you to share your own memories and stories about us.