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October 22, 2015 by Barbara Drake, Patient Family

Miranda is among rarest of the rare with Koolen-De Vries syndrome

This is our little fighter Miranda. She is the rarest of the rare. One of only 100 people diagnosed in the United States with the rare Koolen-De Vries syndrome. We started with Akron Children's Maternal Fetal Medicine and have spent more time here at Akron Children's Hospital in this lady's first … [Read more...]

Filed Under: Stories Tagged With: #ach125, Koolen De-Vries syndrome, maternal fetal medicine center, open heart surgery, reinberger family center

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